The Resource

The Forgotten Cancers Project uses a family, case-control study design.

Data has been collected over a period of five years, from 2011-2016, from participants living in Australia aged 18 years or over at the time of diagnosis with a less common cancer.

All those diagnosed with a cancer other than breast, colorectal, melanoma, prostate, lung, cervical and mesothelioma were eligible to participate, however recruitment efforts focused on the 15 most frequently diagnosed less common cancers: non-Hodgkin lymphoma, leukaemia, multiple myeloma, kidney, bladder, stomach, brain, liver, oesophageal, pancreatic, endometrial/uterine, thyroid, gallbladder, small intestine, and bone cancer.

For each person with cancer a control (family member) was recruited. Participants were asked to complete a series of questionnaires related to genetic, lifestyle and environmental risk factors for cancer, as well as a saliva sample.

In total 2,727 cases and 1,616 controls were recruited to the Project, with 2,396 cases and 1,195 controls providing epidemological data. All 4,343 participants have been linked to the Australian Institute of Health and Welfare’s (AIHW) Australian Cancer Database and National Death Index. A saliva or blood sample has been collected, and DNA extracted and stored, from 3,750 participants.

Summary data will be provided in the near future, please check this page for updates.


Expression of Interest

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