Danielle Piralis was just 38 years old when she was told by her doctor that she was pregnant and that she had chronic lymphocytic leukaemia (CLL). Sadly, a few days later, Danielle suffered a miscarriage.
Danielle still has many unanswered questions related to her CLL diagnosis, and whether her loss was a result of CLL. In an effort to find the answers to help others in a similar situation in future, Danielle has taken part in our Forgotten Cancers Project.
How did you find out about the Forgotten Cancers Project?
I get newsletters from The Leukaemia Foundation and there was an article about the project. They were looking for participants and you know I thought well ‘why not?’.
As a participant in the Forgotten Cancers Project, what is involved?
They sent me out a kit and I did the swab for DNA, which I was a little hesitant about initially as I didn’t want my DNA out but then I thought the possibility of people in future having access to better information as a result of research such as this, so I did. I’ve also done a questionnaire. All together its taken about 3 or 4 hours over the past year and a half, a little bit of time out of my life for what I believe will lead to lots of answers for someone else.
Why did you volunteer for the Forgotten Cancers Project?
My motivation for getting involved is because there is just not enough information about leukaemia. If this research can help specialists provide more insight and give someone in a similar situation to myself more of an understanding of what their cancer is and what they can do to manage it better, then my involvement even in a small way was worthwhile.
What do you hope the Forgotten Cancers Project will achieve?
To give people that are diagnosed with some form of leukaemia the opportunity to have their questions answered and not still have that uneasy feeling of the unknown.
Do you have any advice for people who might consider participating and who meet the criteria?
Do it. It’s not a lot of time out of your life and the feeling of believing you are going to help someone else, whether it’s a million people, or an individual it helps you feel better.