Participant stories

Lydia's story Lydia’s story

April 2018

It was the scariest thing ever. I thought, "Who knows what this is? I’m going to die, at 21 years old."

Read more

Paula and GeoffFamily Paula and Geoff's story

December 2017

At first they thought it was eczema. Then it was dermatitis, then psoriasis. Finally, three years later Geoff found out what it was.

Read more


Judy Margolis Family invaluable as cancer strikes twice

February 2017

Judy credits the support of her treating team and family for getting her through a second diagnosis of cancer.

Read more






Peter's story, participant Peter Hobday

January 2017

In 2014 some unusual symptoms prompted Peter to visit his GP. He was quickly referred to a urologist and diagnosed with bladder cancer shortly thereafter.

Thankfully the cancer was able to be successfully treated, and Peter is grateful for the care provided by his GP and urologist. Peter urges all men to act on any symptoms quickly and to get regular check-ups. 

Read more




Q&A with Danielle, participant Danielle Piralis

April 2016

Danielle Piralis was just 38 years old when she was told by her doctor that she was pregnant and that she had chronic lymphocytic leukaemia (CLL). Sadly, a few days later, Danielle suffered a miscarriage.

Danielle still has many unanswered questions related to her CLL diagnosis, and whether her loss was a result of CLL. In an effort to find the answers to help others in a similar situation in future, Danielle has taken part in our Forgotten Cancers Project.

Read more


‘Social Action Project ’ has Forgotten Cancers Focus Charlotte at her bake sale

3 December 2015

A big thank you to Charlotte Polwarth who has raised a total of $303.40 through her 2014 and 2015 school ‘Social Action Project’. Charlotte held bake and garage sales, and chose to donate to the project in memory of her father who was diagnosed with pancreatic cancer last year.


Nambour General Hospital dresses up for a good cause Block 2 in Hawaiian dress-up

3 December 2015

Thanks to Natalie Young and staff from Block 2, Nambour General Hospital in the Sunshine Coast QLD, for their generous donation of $2000 towards the Forgotten Cancers Project. Each Friday throughout 2015 they held themed dress-up days for a gold coin donation. Some of the themes include 60's, Halloween, Hawaiian, state of origin and superheros.“It has been a pleasure and a whole heap of fun raising much needed funds for your project.”


Want to offer support to others? Woman on the phone

6 November 2015

Would you like to help someone during their cancer experience? We are looking for Victorians who have ‘been there’, are two years post treatment and interested in becoming a Cancer Connect volunteer.

We are particularly keen to hear from people diagnosed with bladder , stomach , uterine , myeloma or acute myeloid leukaemia .

For more information visit their webpage , or register now .

Pancreatic Cancer Awareness Month Tim - Pancreatic Cancer Survivor

1 November 2015

It’s Pancreatic Cancer Awareness month, and Tim knows more about this disease than most - he was diagnosed in March 2012. “I’m one of the lucky ones. I’m now cancer free, back working and enjoying life.” Everyone with a less-common cancer should be able to recover like Tim. That’s why we created the Forgotten Cancers Project. Join, or spread the word.


Grey Matters raises awareness  Grey Matters logo

30 October 2015

The Forgotten Cancers team would like to thank Janet and her support group, Grey Matters . Each month they have an information stand at the Royal Melbourne Hospital where they assist us in promoting the project. If you have been affected by a low grade brain tumour and are interested in joining Grey Matters please visit their website .

Emeralds and Ivy Ball

9 October 2015

The Emeralds and Ivy Ball is Cancer Council Australia’s annual black tie fundraising event, held at the stunning Sydney Town Hall and hosted by Ronan Keating. Funds raised through ticket sales and auction items on the night will go towards the Forgotten Cancers Project – in particular, assisting with the costs involved in collecting participant data and DNA.

Geraldine from NSW shares her story

23 July 2015

Geraldine Bull was diagnosed with non-Hodgkins Lymphoma almost nine years ago and is a great supporter of the project. “It would be nice to have some idea of why you get cancer…there are a whole lot of cancers people don’t know about.”

Read the full article.

Family history drives Gemma’s support

14 July 2015

As a part of I Will for Cancer , year 10 student Gemma Tripp donated over $6000 she raised at a trivia night to the Project. Gemma chose to donate the funds to the project as both of her grandparents had been diagnosed with a less common cancer.

Country Women’s Association tackles forgotten cancers

28 May 2015

The Forgotten Cancers Project was the lucky recipient of the Country Women’s Association’s Thanksgiving Fund for 2014. This fund supports a chosen medical research program, and was awarded to the project team at their 2015 state conference in Bendigo. Cancer Council Victoria CEO Todd Harper attended to receive a cheque for over $30,000.

Leukaemia Foundation spreads the word

Thanks to the Leukaemia Foundation for including information about the project in their various disease-specific newsletters. We have seen a significant increase in the participation of people with blood cancers, which has assisted in bringing us one step closer to understanding more about this group of diseases.

If you have any photos of your event, or would like to share your story, please contact the team on or 1800 068 289.